Should secondary data users pay to access de-identified health data?

Date:

Tue, 10 Jan 2023

Time:

10 am-11 am [Singapore [GMT +8]

Location:

Seminar Room 2, Level 8
Tahir Foundation Building (MD1)
National University of Singapore
12 Science Drive 2, Singapore 117549

Abstract:

This presentation discusses the challenges and potential solutions to sharing de-identified individual level health data. The talk opens with a debate question about paying to access data for secondary use and goes on the discuss other ethical and practical aspects of data sharing such as consent, data ownership and potential harms of sharing. Prof. Phaik Yeong Cheah will also talk about current data sharing requirements by funders and journals, and some practical solutions to promote data sharing while mitigating potential harms. She will draw on her experience coordinating the MORU Data Access Committee, her own research on data sharing and chairing Covid-19 Clinical Research Coalition Data Sharing Working Group.

Speakers:

Prof. Cheah Phaik Yeong
Bangkok based Mahidol Oxford Tropical Medicine Research Unit (MORU)

Professor Phaik Yeong Cheah (B.Pharm, MSc, PhD), is a Professor of Global Health and bioethicist at the University of Oxford. She is the head of the Bioethics and Engagement team at the Bangkok based Mahidol Oxford Tropical Medicine Research Unit (MORU). Phaik Yeong conducts ethics research and manages MORU’s community and public engagement programme. Her research interests include ethical aspects of data sharing, antimicrobial resistance and research involving vulnerable populations such as migrants, pregnant women and children. Find out more about her profile here.